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Originally posted by SIGNYM:
You've given me some insight as to what was happening with dear daughter. She has virtually no memories of before 16y/o, which distresses her, bc if you you looked at her EEG back then it was like she was seizing ALL THE TIME. (A rare epileptic encephalopathic syndrome) It seems that transient memories were just getting wiped out.

One of my reasons for distrusting doctors is bc I was the one who arrived at her dx. And the rx she was being given for seizure control was making her syndrome worse. Even after being given the correct dx, I was the one proposing treatments. It was heartbreaking.


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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

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Originally posted by SIGNYM:
Oh, wow! That is rough too!
How old were you when that happened?

And was it primarily your mom who looked after you during recovery?
Yanno, it's so hard looking after someone that you love. We're not medical professionals. You wind up asking yourself ... is this a normal part of recovery? Of illness? Of dying? Are things getting worse? Better? Am I doing the right thing?

And by the time you learn from one experience, it's too late for that event. You don't get to apply what you learned bc there's usually no "next time" for that person or illness.

I'm sure you went thru that with your mom, and I'll bet she went thru that with you.

It's a damn good thing your neighbor spoke up. I shudder to think what might have happened otherwise. Shame on the Dr for being so dismissive!


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"It may be dangerous to be America's enemy, but to be America's friend is fatal."- Henry Kissinger

AMERICANS SUPPORT AMERICA

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