My Son was just diagnosed with type 1 diabedes... by chrisisall

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My Son was just diagnosed with type 1 diabedes...

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POSTED BY: CHRISISALL
UPDATED: Thursday, September 8, 2011 20:39
SHORT URL: http://bit.ly/iGtx8f
VIEWED: 8686
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Monday, June 27, 2011 5:25 PM

CHRISISALL

I'm feeling pretty shattered right now... anyone here have any positive stories to share on this? Good & continuing outcomes with this affliction?
I could use a little right about now...

Thanks.

The laughing Chrisisall

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Monday, June 27, 2011 6:27 PM

WISHIMAY

It's just something ta work around...Nobody's kid is perfect...
My cousin's kid is diabetic, born with it...was in a coma by the time they figured it out...He's still an active little bugger, though...and he's broken more things and had more surgeries than he's got years...still kickin' though...and there are special camps for diabetic kids that have med staff on hand, just FYI...

My sympathies to your son, health challenges suck...

This run in your family?

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Monday, June 27, 2011 7:47 PM

RIONAEIRE

Beir bua agus beannacht

How old is your son? At first it will be an adjustment for all of you guys, checking sugar, eating accordingly, figuring out how much insalin he needs based on daily activities and foods etc. But you guys will settle into the new normal and most kids with it grow up to have pretty ordinary lives. Just make sure that you and mom are all the same page communication wise about his health needs etc. I know you guys are getting/have gotten divorced recently. My little second cousin has it and he's an ordinary 9 year old, rambunctious and loves Star Wars, normal kid. He really enjoys diabetes camp each summer because all the other kids are experiencing similar things to what he experiences and its no biggie, they're all working on it and so it is normal.

The adults I know with type 1 both have it under good control and it doesn't get in their way of following their dreams. Sure it can be inconvenient and one needs to stay on top of it, but its manageable.

"A completely coherant River means writers don't deliver" KatTaya

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Monday, June 27, 2011 11:11 PM

FREMDFIRMA

Man, the hits just keep comin for you, don't they ?
Hang in there guy, we're here for you.

Truthfully I know very little, we have previously dealt with a diabetic before (and mood swings don't help, that for sure) and the key seemed to be keeping on top of it - very rigid, iron-handed management and no slacking on diet or testing, which many tend to sluff off when they start feeling better, and they really shouldn't.

As for how to manage that level of discipline over time, all I can offer is a maxim from my business, but I guess it applies here as well - good habits drive out bad habits, develop the former or risk the latter.

The rest of it seems common sense, avoid crap like MSG, HFCS and whatnot like the plague, especially the latter as it's worse for diabetics, not that it's good for anyone, really.

If he has a hankering for sweets, carob as I recall was passable, I don't remember whether honey was ok or not - you'd really have to consult someone on diet, or at least google and crosscheck...
Alas this one is outside my expertise, and you know how useless I can be in that case, lol.

Still, if you need anything, information-wise, you just holler, eh ?

-Frem

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Monday, June 27, 2011 11:59 PM

LWAVES

Hey man, sorry to hear about this for you and especially SonIsAll. Send him my sympathies.
He has posted here and that makes him one of us (one of us, one of us, one of....

). Whatever help/advice we can give he is more than welcome to.

The only diabetic I know is my Dad, he was diagnosed just before last Xmas. It hasn't stopped him doing anything except from an eating and drinking standpoint.
All I can really offer from his situation is to get into a steady routine with what you need to do as quick as you can. Make it part of ordinary daily life so that it's just like brushing teeth or some other regular activity. After that it's just a case of being careful but you will all get used to it.
And I have to reiterate the point about you and MrsIsAll/ExIsAll - if you aren't together then definitely make sure you agree on this. Make sure you both give him the right food/drink etc and that his insulin level is constant. The last thing any of you want is one saying he's alright to eat something and the other saying he isn't and having his levels going up and down.

From what little I know it is very manageable and shouldn't stop him leading a normal life as long as you all play by the rules of the condition.

Again wish him my best and let us know how you all get on.

"The greatest invention ever is not the wheel. It's the second wheel." - Rich Hall

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Tuesday, June 28, 2011 1:59 AM

EVILDINOSAUR

My dad has had type 1 diabetes since he was a kid and it really hasn't effected him much at all. He's all kinds of active, he's in his late 50's and still showing no signs of slowing down. And with the technology available these days, it's getting easier and easier to live with.

"Haha, mine is an evil laugh."

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Tuesday, June 28, 2011 2:38 AM

CHRISISALL

Thanks everyone! Oh, and no divorce...
Settling into the reality today.
gotta go to the Docs now.

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Tuesday, June 28, 2011 3:34 AM

GEEZER

Keep the Shiny side up

My experience with a family member is pretty much the same as everyone else. My cousin's husband had type 1 for as long as I knew him(pretty much since I was born), and it didn't keep them from doing much of anything: working, traveling, socializing. Just had to watch diet, monitor glucose levels, and take insulin. He made it into his eighties.

"Keep the Shiny side up"

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Tuesday, June 28, 2011 3:44 AM

PHOENIXROSE

You think you know--what's to come, what you are. You haven't even begun.

Rocky Mountain Chocolate Factory has excellent sugar-free chocolates. There's an ice cream brand called Clemmy's that was made for diabetics by a diabetic, and it's quite tasty. (just don't overdo it or it can upset the stomach)
Also, meat and vegetables are good for you!
And if he watches sugar his whole life, as he should, his teeth will be soooo healthy.

I could actually ramble for days about the benefits of not eating sugar, if you want to hear more.

What reason had proved best ceased to look absurd to the eye, which shows how idle it is to think anything ridiculous except what is wrong.

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Tuesday, June 28, 2011 4:02 AM

BYTEMITE

Aw.

Well, I don't have any stories, but I wish you well. PR can probably help you here a lot.

By no divorce, do you mean you patched things up with the missus? That's something going right at least.

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Tuesday, June 28, 2011 4:07 AM

SIMONWHO

No practical experience to offer, just wanted to wish you and your son luck.

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Tuesday, June 28, 2011 7:27 AM

JOSSISAGOD

While I don't have first hand experience with it, my mother was diagnosed with type 1 21 years ago, there have been quite a few advancements in treatment since then. My recommendation is getting the pump, kind of a pain in the ass for the first week or two, it seemed, but in the long run much easier than stopping everything to give oneself a shot of insulin...

Best wishes, things WILL get better!

Fe'nos Tol
JOSSIS(Most Definitely)AGOD

Self appointed Forsaken! Been on the list for a while now!

98% of teens have smoked pot, if you are one of the 2% that haven't, copy this into your signature.
"Look at me, I'm STUPID!" The Doctor.

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Tuesday, June 28, 2011 10:03 AM

CHRISISALL

Thanks again for all your support! We just came back from the Doc, & it seems like a totally manageable thing.
Sonisall is just SOOOO relieved he can still eat home fries & pancakes!!!

Wifeisall & I seem more broken up about this than HE is!

Quote:
Originally posted by Bytemite:
By no divorce, do you mean you patched things up with the missus? That's something going right at least.

Well, she & I have a very 'Mal & Inara' kind of relationship, it seems.

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Tuesday, June 28, 2011 10:05 AM

CHRISISALL

Quote:
Originally posted by RionaEire:
How old is your son?

12. But he's an old soul.

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Tuesday, June 28, 2011 10:05 AM

BYTEMITE

Hah, gotcha. Well, good to know you're feeling better about this and your kid's doing well. :)

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Tuesday, June 28, 2011 12:50 PM

CYBERSNARK

Yeah, glad to hear everyone's doing well.

No practical advice here, but continuing best wishes.

-----
We applied the cortical electrodes but were unable to get a neural reaction from either patient.

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Tuesday, June 28, 2011 1:12 PM

JAMERON4EVA

Quote:
Originally posted by chrisisall:
I'm feeling pretty shattered right now... anyone here have any positive stories to share on this? Good & continuing outcomes with this affliction?
I could use a little right about now...

Thanks.

The laughing Chrisisall

I know it sucks, my mom and dad have it, my mom has the type which you need insulin, dad has the type you dont need the shots. The easiest things too look for are like, mood changes, voice changes like stumbling and repeating words and phrses and not making sense, other things like, they start to sweat alot. things like seeing that can prevent them from slipping into a coma. Everyones a little different, but thats been the major signs for me.

"Mom, he has her chip. He has her."
John Connor,"Born To Run", TSCC EP 2x22

"We mustn't over stimulate young minds. Das ist verboten!" - Rappy

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Tuesday, June 28, 2011 1:39 PM

CHRISISALL

Quote:
Originally posted by Cybersnark:
Yeah, glad to hear everyone's doing well.

No practical advice here, but continuing best wishes.

Thanks, Cs.

The laughing Chrisisall

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Tuesday, June 28, 2011 1:42 PM

CHRISISALL

Quote:
Originally posted by jameron4eva:
The easiest things too look for are like, mood changes, voice changes like stumbling and repeating words and phrses and not making sense, other things like, they start to sweat alot. things like seeing that can prevent them from slipping into a coma.

Thanks J, yeah, I worked with a guy that needed really sugary stuff every once in a while b/cause of it. I remember the vacant stare & no-sense talk associated with ultra low blood sugar...

The laughing Chrisisall

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Tuesday, June 28, 2011 1:55 PM

RIONAEIRE

Beir bua agus beannacht

That's really cool that things are working out with the wife, divorce is super hard on kids at that age, everything is hard on kids that age. So much of diabetes is managing the insalin, testing the blood sugar, staying on top of it and making sure you're in ballance. My lil' second cousin has the pump, I didn't mention it because I wasn't sure how old your kid was and I don't know how it is decided who should have it and who shouldn't. I know that for Chris it has been really good and means he can do more of his little boy stuff without having to stop and do diabetes stuff. But everyone's different so I can't say whether a pump is right for your son or not. Its just good that you guys know what's wrong and are learning how to manage it and get back in ballance. It will take a while to get it all figured out but you guys will get into a routine. Frequent sugar testing is important because if it gets too low (which sometimes happens after getting your insalin shot if you have been doing lots of excercise but haven't eaten in a while) can be a problem. So its good to have something sweet on hand just in case. As time goes by he'll probably learn to feel some of what his body needs. My dad (with type 2 but now on insalin) has a sweet treat tucked up in the van for if he gets too low, he can feel it, it makes him dizzy and he feels weird, so he eats to get it up to normal again.

I'm glad he's taking it okay so far, just remember that you're all adjusting to something new.

"A completely coherant River means writers don't deliver" KatTaya

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Tuesday, June 28, 2011 1:59 PM

CHRISISALL

Yeah, the one thing they didn't tell us is that erring on the too-little insulin side was better than erring on the too-much side. I guess they want to have us aim for the middle.
A place in the middle is nice.

The laughing Chrisisall

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Tuesday, June 28, 2011 2:17 PM

OPTIMUS1998

I've got friends who are insulin dependent(type 1), and my dad has type 2( No insulin, just watch his diet & take fancy pills!)
hopefully you are in a place where you can laugh @ things by now, as i always find humor helps everything.

which reminds me of the xkcd Cartoon, Linked below.

Select to view spoiler:

the Dinos in Jurassic park were engineered to be incapable of producing the amino acid lysine, so they were dependent upon the keepers dosed food stuffs
(also all female so they couldn't reproduce on their own, thanks frog dna!)

I was a Lima loser for 29 years before "glee" introduced us to the term. -ME

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Tuesday, June 28, 2011 3:30 PM

ECGORDON

There's no place I can be since I found Serenity.

Tough news, Chris, but not insurmountable as I'm sure you will soon learn. I don't have any personal experiences to share, although I do know a few people afflicted. However, my sister is very knowledgeable on the subject, it was her specialty as a dietician working with VA hospitals. She is retired now, and I'm not sure what she knows will translate to tips about someone as young as your son, but I will check with her and see what she has to say.

For now, just follow the doctors' advice but do some research on your own, and don't hesitate to seek solace with your fellow Browncoats. We got your back.

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Tuesday, June 28, 2011 7:00 PM

MSA

HUGS ...I have had numerous diabetic students and they all seem to manage well. I've also had several friends with it and NV has it...
Really it just means being more conscious of food and exercises and checking blood sugar.

It'll be ok

To love someone is to see a miracle invisible to others.
--Francois Mauriac
It's fuzzy-minded liberal thinking like that that gets you eaten.

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Wednesday, June 29, 2011 2:31 AM

DREAMTROVE

Tough break, sorry to hear.

I have a friend who has it, and is now blind, a common side effect.

The good news is there are some dietary supplements that stem some of the side effects.

I'll post stuff as I run into it.

That's what a ship is, you know - it's not just a keel and a hull and a deck and sails, that's what a ship needs.

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Wednesday, June 29, 2011 1:05 PM

CHRISISALL

Quote:
Originally posted by MsA:

Really it just means being more conscious of food and exercises and checking blood sugar.

It'll be ok

Love the hugs!

Yeah, we're settling into it now. It helps that Sonisall's IQ is higher than mine, and that he's great at math...

He can tell us if we do any parental dummy stuff concerning the injections.

The laughing Chrisisall

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Wednesday, June 29, 2011 3:42 PM

RIONAEIRE

Beir bua agus beannacht

I'm really glad things are working out with your wife and that you guys are starting to get a feel for this new diabetes thing. I think its going to work out and it sounds like he's taking it well and learning how to do the things he needs to do and keeping you guys on track, :)

"A completely coherant River means writers don't deliver" KatTaya

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Wednesday, June 29, 2011 7:28 PM

THEHAPPYTRADER

Can't say much that ain't been said, but I do hope for the best for all of you.

I'm not a diabetic expert, but I have a few friends with type I and II diabetes and my g/f could potentially become type II if she's not careful with her diet and such. Anyway, the point is diabetes doesn't have to stop him from accomplishing anything. I know it's been said many times, but sometimes it's nice to keep hearing

Also, majority of these friends of mine were fairly athletic. Especially the girl with type I diabetes, before she discovered alcohol in college anyway... She had this insulin pump at her belt that I guess was plugged in somewhere and regulated that for her. I used to tease her about being 'assimilated into the borg collective.'

Best of luck adjusting!

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Wednesday, August 31, 2011 4:36 PM

WISHIMAY

Wondering...How goes it?

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Wednesday, August 31, 2011 4:42 PM

CHRISISALL

Quote:
Originally posted by Wishimay:
Wondering...How goes it?

We discovered that an ice pack applied to the injection area does wonders for the pin-prick feeling. All is well.
Except that Wash is gone. My Son won't watch Serenity for that reason.

The laughing Chrisisall

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Wednesday, August 31, 2011 5:59 PM

WISHIMAY

Tell him that theoretically Wash was a goner from the minute he took the helm...I don't know how many plane crashes I've read about where the pilot dies, but most everybody else lives... though they aren't usually impaled by ...Landscaping timbers??? Is that what they were??? Come ta think of it...Where in the hell did reavers get a landscaping timber shooting gun, anyway? And where can I get one!!! Oh...well, now I have to watch it again so's I can figure it out. Or do you know?

Wait -this was about yer son...Glad to know he's adjusting. Youth are good at that.

Wouldn't be a Wishy post if I didn't threadjack something

You just call me Wishy-washy...

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Thursday, September 1, 2011 6:08 AM

MSA

Maybe he could re-write the ending and make his own graphic novel:)
Sonisall fan fic here we come:)
Glad he's doing well...side note , if the ice thing bugs him, get the gel used for sunburns ( as it contains a topical anesthetic lidocane) and it'll lightly numb the area

To love someone is to see a miracle invisible to others.
--Francois Mauriac
It's fuzzy-minded liberal thinking like that that gets you eaten.

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Thursday, September 1, 2011 6:17 AM

CHRISISALL

Thanks for the tip!

I'm waiting for a fan somewhere to digitally reconstruct the movie so Wash doesn't die.
I know it'll happen eventually.

The laughing Chrisisall

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Friday, September 2, 2011 7:12 PM

AURAPTOR

America loves a winner!

Sorry to hear the news. Only just saw the thread this week, and feel stupider than normal for the late well wishes.

You've got lots who have y'alls back , and that's something.

" I do not love the bright sword for its sharpness, nor the arrow for its swiftness, nor the warrior for his glory. I love only that which they defend. "

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Saturday, September 3, 2011 3:03 AM

CHRISISALL

Quote:
Originally posted by AURaptor:

You've got lots who have y'alls back , and that's something.

Thanks AU.

The laughing Chrisisall

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Saturday, September 3, 2011 3:10 AM

BRUCEPLUTO

Chris!

I’m just seeing this . I do hope everything goes well for you and your family.

BPZ

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Saturday, September 3, 2011 3:24 AM

CHRISISALL

It's just something that had an effect on the landscape is all.

Thanks, we're fine.

The laughing Chrisisall

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Wednesday, September 7, 2011 8:06 PM

RIONAEIRE

Beir bua agus beannacht

I don't prefer the BDM either, for that as well as other reasons. I can watch parts of it but I don't like watching the whole thing, its too emotionally draining and defeating. Hopefully he'll come to a place where he can watch it once and then he doesn't ever have to watch it again if he doesn't like it, but if he does end up liking it then he'll know.

"A completely coherant River means writers don't deliver" KatTaya

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Thursday, September 8, 2011 8:39 PM

BIGRICHARD

Hey Chris,

Just saw this and wanted to wish you all the best.
Hope SonIsAll is getting more accustomed to it, and that you're both managing fine.

Good luck, sir!

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